In the quiet misty morning When the moon has gone to bed When the sparrows stop their singing And the sky is clear and red When the summer ceased it’s gleaming When the corn is past its prime When adventures lost its meaning I’ll be homeward-bound in time ~Marta Keen from “Homeward Bound”
On Halloween day in 1985, I packed up a roll-up mattress pad, grabbed one lonely pumpkin from our small garden, locked our rental house door for the last time, then climbed in my car to head two hours north out of Seattle.
I don’t recall looking back in the rear view mirror at the skyline after nine years living in the city. My husband had moved to Whatcom County two months earlier to start his new job. I had stayed behind to wrap up my Group Health family practice in the Rainier Valley of central Seattle.
I was leaving the city for our new rural home and a very uncertain professional future.
I knew two things for sure: I was finally several months pregnant after a miscarriage and two years of trying to conceive, so our family was on its way, and we were going to live in our own house with a few acres and a barn.
A real (sort of) starter farm and starter family, a dream we both shared. Our home sits in the midst of woods and corn fields, with deer strolling through the fields at dawn, coyotes howling at night, Canadian geese and trumpeter swans calling from overhead and salmon thriving in nearby streams. The snowy Cascades greet us in the morning to the east, the Canadian Coastal range majestic to the north and not far to the west, the Salish Sea/Puget Sound.
Since it wouldn’t be a farm without animals, I stopped at the first pet store I drove past and found two tortoise shell calico kitten sisters peering up at me, just waiting for new adventures in farmland. Their box was packed into the one spot left beside me in my little Mazda.
With that simple commitment to raise and nurture those kittens alongside the life growing inside me, life seemed very complete.
I will never forget the freedom I felt on that drive north. The highway seemed more open, the fall colors more vibrant, the wind more energizing, our baby kicking my belly, the kittens mewing from their box. There seemed so much potential even though I had just left behind the greatest family practice found in any urban setting (at the time, it was the most ethnically diverse zip code in the United States) with patients from all over the world: alongside the multi-racial inner city population living in subsidized housing developments, my patients included Muslim immigrants from the Middle East and Indonesia, Orthodox Jews, Italian Catholics, and refugees from Cambodia, Laos, and Vietnam.
I will never know so much variety of ethnic background and perspective again. If I could have packed them all into my little car and driven them north with me, I would have.
Despite what I was leaving behind, there was certainly a feeling of freedom that rainy Halloween day as the big city disappeared in the rear view mirror.
No longer would I sit captive in freeway rush-hour bumper to bumper traffic jams. I traded that for a new rural commute winding through farm fields while watching eagles fly overhead. I could become part of a community in a way I never could manage in the city, visiting with friends at the grocery store, playing piano and teaching Sunday School at church and serving on various community boards.
After the new kittens, dubbed Nutmeg and Oregano, arrived on our farm, we added even more diversity: a Belgian Tervuren dog Tango, a Haflinger horse Greta, Toggenburg goats Tamsin and her kids, a few Toulouse geese, Araucana chickens, Fiona the Scottish Highland cow, then another Haflinger Hans and another, Tamara. I worked as a fill-in doctor in four different clinics before our first baby was born, then settled into part-time practice in several different clinics for most of my career.
With those new commitments, life was fulfilling and busy – we soon added a little brother and seven years later, a sister. Then it felt like our family was complete.
Forty years later, our children have grown and gone to homes of their own, all married to wonderful spouses, raising six delightful children for us to lavish love on.
Somehow life now feels even more complete.
A few cats, a Cardigan Corgi, and three ponies still live at the farm with us. Now retired from our professional lives “in town”, we enjoy the freedom of slower and quieter days, nurtured and nurturing.
It all started October 31, 1985 with two orange and black kittens and a pumpkin sitting beside me in a little Mazda, my husband awaiting my homecoming 100 miles north. Now, forty years later, we celebrate this Halloween anniversary of farm and family, still pregnant with the possibility that life is never truly complete when there is always a new day just around the corner.
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But you can have the fig tree and its fat leaves like clown hands gloved with green. You can have the touch of a single eleven-year-old finger on your cheek, waking you at one a.m. to say the hamster is back. You can have the purr of the cat and the soulful look of the black dog, the look that says, If I could I would bite every sorrow until it fled, and when it is August, you can have August and abundantly so. You can have love, though often it will be mysterious, like the white foam that bubbles up at the top of the bean pot over the red kidneys until you realize foam’s twin is blood.
You can speak a foreign language, sometimes, and it can mean something. You can visit the marker on the grave where your father wept openly. You can’t bring back the dead, but you can have the words forgive and forget hold hands as if they meant to spend a lifetime together. You can have your grandfather sitting on the side of your bed, at least for a while, you can have clouds and letters, the leaping of distances, and Indian food with yellow sauce like sunrise. You can’t count on grace to pick you out of a crowd but here is your friend to teach you how to high jump, how to throw yourself over the bar, backwards, until you learn about love, about sweet surrender, and here are periwinkles, buses that kneel, farms in the mind as real as Africa.
And when adulthood fails you, you can still summon the memory of the black swan on the pond of your childhood, the rye bread with peanut butter and bananas your grandmother gave you while the rest of the family slept. There is the voice you can still summon at will, like your mother’s, it will always whisper, you can’t have it all, but there is this. ~Barbara Ras from “You Can’t Have It All” from Bite Every Sorrow
My pragmatic mother gave up her teaching career for marriage and family so would remind me regularly that I couldn’t have it all: there was no way a woman can have a husband and children and a farm and a garden and animals and a profession and write and travel and volunteer in the community and not make a mess of it all and herself.
My father would listen to her and say to me softly under his breath: “you do whatever you put your mind to…you know what you are here for.”
They were both right.
The alluring abundance of this life has invited me to want to touch and feel and taste it all, not unlike another woman who was placed with purpose in the Garden to be a side-by-side companion and co-worker. Yet she demonstrated what happens when you want more than you are given and yes, she indeed made a mess of things.
Yet there is this: despite wanting it all and working hard for it all and believing I could do it all, I missed the point altogether.
Life is all gift, never earned. Life is all grace, not deserved. It is all August abundance, it is right now, sustaining us through the year’s droughts and floods and storms and drab gray weather.
And there is this: I know what I am here for.
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Let us go forward quietly, forever making for the light, and lifting up our hearts in the knowledge that we are as others are (and that others are as we are), and that it is right to love one another in the best possible way – believing all things, hoping for all things, and enduring all things. ~Vincent Van Gogh from a Letterto Theo Van Gogh – 3 April 1878
I have lived so long On the cold hills alone . . . I loved the rock And the lean pine trees, Hated the life in the turfy meadow, Hated the heavy, sensuous bees. I have lived so long Under the high monotony of starry skies, I am so cased about With the clean wind and the cold nights, People will not let me in To their warm gardens Full of bees. ~Janet Loxley Lewis “Austerity”
Everywhere transience is plunging into the depths of Being. It is our task to imprint this temporary, perishable earth into ourselves, so deeply, so painfully and passionately, that its essence can rise again, invisible, inside of us. We are the bees of the invisible. We wildly collect the honey of the visible, to store it in the great golden hive of the invisible. ~Rainier Maria Rilke in a letter to his friend Witold Hulewicz, 1925
I am convinced, reading the news, too many people are forced to survive in a world cold and cruel, without warmth or safety, too many empty stomachs, no healing hands for injury or disease.
Our country was trying to help up until the last few months when so much has been pulled away.
No longer are we, the helper bees, sent to the invisible, bringing tangible hope and light, food and meds, to those who have so little.
No longer do we bring collected honey to the suffering, the ill, the poor and invisible who share this planet.
Oh Lord, turn us away from such austerity. Let us not forget how to share the humming riches of Your warm garden.
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It can be a gift or a private kind of distress, depending on if you’ve found your purpose. My friend, a physician and farmer, blends her two passions into a life of caring.
Leaving her surgical gloves in the treatment room, she dons leather work gloves when she returns to the farm. This evening the old work gloves are nestled together on a bench by the back door
as if one couldn’t function without the other. They hold the form of her hands. The gloves are dirty, the leather wrinkled, a hole worn through the tip of the index finger, right hand.
Over years of service, gloves have protected her hands as she treated deep wounds in the clinic and in the barn. This gift! Dare I say, her work fits her like a glove? ~Lois Edstrom “Gift of Work” from A Fragile Light
Nothing much to look at lying on the shelf, one on top of the other, an old man resting his hands on a cane. Dried-out yellow cowhide, lines cut deep into the palms from stones, weeds pulled. Fingers crumpled, swollen like grub worms shoveled up in planting. An extra pair of hands helping with lawn work, flower beds, shrubs, whatever else comes along. A grief pulled on to bury the old cat some kid in a speeding pickup knocked out of the street like he’d kick a can. Or kneeling last fall to unearth the blooming rose suddenly plucked by an ice storm, then shaking rich compost loose from its twisted fingers still clenched, holding on for dear life. ~Ron Stottlemyer “Work Gloves”
My farm work gloves tend to look ragged at the end of a year of service. I always depend on being gifted a new pair at Christmas to start afresh. It can take awhile to break them in to the point where they feel like a “second skin.”
These gloves keep me from blistering while forking innumerable loads of smelly manure into wheelbarrows, but also help me unkink frozen hoses, tear away blackberry vines from fencing, pull thistle from the field and heavy hay bales from the haymow.
Over the years, I’ve gone through a few dozen work gloves which have protected my hands as I’ve cleaned and bandaged deep wounds on legs and hooves, pulled on foals during the hard contractions of difficult births, held the head of dying animals as they fall asleep one final time.
Without wearing my protective farm gloves over the years, my hands would be looking very much scarred up like my tired gloves do, full of rips and holes from the thorns and barbs of the world, sustaining scratches, callouses and blisters from the hard work of life.
But they don’t.
Thanks to these gloves, before I retired, I was presentable for my “day” work as a doctor where I would don a different set of gloves many times a day as I tended to my patients’ wounds and worry.
But my work gloves don’t tell my whole story of gratitude.
I’m thankful to a Creator God who doesn’t wear gloves when He goes to work in our world: -He gathers us up even when we are dirty, smelly, and unworthy. -He eases us into this life when we are vulnerable and weak, and carries us gently home as we leave this world, weak and vulnerable. -He holds us as we bleed from self and other-inflicted wounds. -He won’t let us go, even when we fight back, or try not to pay attention, or care who He is.
He hangs on to us for dear life.
And this God came to live beside us with hands just like ours~ tender, beautiful, easy-to-wound hands that bled because He didn’t need or want to wear gloves for what He came to do~
His hands bear evidence of His love…
photo of a plowman teamster’s hand by Joel De WaardAI image created for this post
contains these lyrics by Kim Andre Arnesen: Moving like the rise and fall of wings Hands that shape our calling voice On the edge of answers You’ve heard our cry, you’ve known our cry…
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…you mustn’t be frightened … if a sadness rises in front of you, larger than any you have ever seen; if an anxiety, like light and cloud-shadows, moves over your hands and over everything you do. You must realize that something is happening to you, that life has not forgotten you, that it holds you in its hand and will not let you fall. Why do you want to shut out of your life any uneasiness, any misery, any depression, since after all you don’t know what work these conditions are doing inside you? ~Rainer Maria Rilke from Letters to a Young Poet
…difficulties are magnified out of all proportion simply by fear and anxiety. From the moment we wake until we fall asleep we must commend other people wholly and unreservedly to God and leave them in his hands, and transform our anxiety for them into prayers on their behalf: With sorrow and with grief… God will not be distracted. ~Dietrich Bonhoeffer in Letters from Prison
During my decades as a primary care physician for a university health center, my clinic days were often filled with young adults who were so consumed by anxiety they were immobilized in their ability to move forward through life’s inevitable obstacles and difficulties. They were so stuck in overwhelming feelings, they couldn’t sleep or eat or think clearly. They tended to self-medicate, self-injure and self-hate. Unable to nurture themselves or others, they withered like a flower without roots deep enough to reach the vast reservoir untapped beneath them. In epidemic numbers, some decide to die, even before life really has fully begun for them.
My role was to help find healing solutions, whether it was counseling therapy, a break from school, or a medicine that may give some form of relief.
My heart knows the ultimate answer is not as simple as choosing the right prescription – light and cloud shadows differ for each person – it can feel like the sun is blocked forever, all that is left is rain and snow and gray.
I too have known anxiety and how it can distort every thought.
We who are anxious can depend upon a Creator who is not distracted from His care for us even if we have turned away in our worry and sorrow, unable to look past our own eyelashes.
Like a thirsty withering plant, we need to reach higher and deeper: asking for help and support, working through solutions with those helpers, acknowledging there exists a healing power greater than ourselves.
So we are called to pray for ourselves and for others. Self compassion and caring for others can disable anxiety and fear by transforming it to growth, gratitude and grace.
No longer withering, we just might bloom.
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The second before the sun went out we saw a wall of dark shadow come speeding at us. We no sooner saw it than it was upon us, like thunder. It roared up the valley. It slammed our hill and knocked us out. It was the monstrous swift shadow cone of the moon. I have since read that this wave of shadow moves 1,800 miles an hour. Language can give no sense of this sort of speed—1,800 miles an hour. It was 195 miles wide. No end was in sight—you saw only the edge. It rolled at you across the land at 1,800 miles an hour, hauling darkness like plague behind it. Seeing it, and knowing it was coming straight for you, was like feeling a slug of anesthetic shoot up your arm. If you think very fast, you may have time to think, “Soon it will hit my brain.” You can feel the deadness race up your arm; you can feel the appalling, inhuman speed of your own blood. We saw the wall of shadow coming, and screamed before it hit.
This was the universe about which we have read so much and never before felt: the universe as a clockwork of loose spheres flung at stupefying, unauthorized speeds. How could anything moving so fast not crash, not veer from its orbit amok like a car out of control on a turn?
Less than two minutes later, when the sun emerged, the trailing edge of the shadow cone sped away. It coursed down our hill and raced eastward over the plain, faster than the eye could believe; it swept over the plain and dropped over the planet’s rim in a twinkling. It had clobbered us, and now it roared away. We blinked in the light. It was as though an enormous, loping god in the sky had reached down and slapped the Earth’s face.
When the sun appeared as a blinding bead on the ring’s side, the eclipse was over. The black lens cover appeared again, back-lighted, and slid away. At once the yellow light made the sky blue again; the black lid dissolved and vanished. The real world began there. I remember now: We all hurried away.
We never looked back. It was a general vamoose … but enough is enough. One turns at last even from glory itself with a sigh of relief. From the depths of mystery, and even from the heights of splendor, we bounce back and hurry for the latitudes of home. ~Annie Dillard from her essay “Total Eclipse” in The Atlantic about the February 1979 eclipse in Washington State
From my six week psychiatric inpatient rotation at a Veteran’s Hospital—late winter 1979
Sixty eight year old male catatonic with depression
He lies still, so very still under the sheet, eyes closed; the only clue that he is living is the slight rise and fall of his chest. His face is skull- like framing his sunken eyes, his facial bones standing out like shelves above the hollows of his cheeks, his hands lie skeletal next to an emaciated body. He looks as if he is dying of cancer but without the smell of decay. He rouses a little when touched, not at all when spoken to. His eyes open only when it is demanded of him, and he focuses with difficulty. His tongue is thick and dry, his whispered words mostly indecipherable, heard best by bending down low to the bed, holding an ear almost to his cracked lips.
He has stopped feeding himself, not caring about hunger pangs, not salivating at enticing aromas or enjoying the taste of beloved coffee. His meals are fed through a beige rubber tube running through a hole in his abdominal wall emptying into his stomach, dripping a yeasty smelling concoction of thick white fluid full of calories. He ‘eats’ without tasting and without caring. His sedating antidepressant pills are crushed, pushed through the tube, oozing into him, deepening his sleep, but are designed to eventually wake him from his deep debilitating melancholy.
After two weeks of treatment and nutrition, his cheeks start to fill in, and his eyes are closed less often. He watches people as they move around the room and he responds a little faster to questions and starts to look us in the eye. He asks for coffee, then pudding and eventually he asks for steak. By the third week he is sitting up in a chair, reading the paper.
After a month, he walks out of the hospital, 15 pounds heavier than when he was wheeled in. His lips, no longer dried and cracking, have begun to smile again.
Thirty two year old male rescued by the Coast Guard at 3 AM in the middle of the bay
As he shouts, his eyes dart, his voice breaks, his head tosses back and forth, his back arches and then collapses as he lies tethered to the gurney with leather restraints. He writhes constantly, his arm and leg muscles flexing against the wrist and ankle bracelets.
“The angels are waiting!! They’re calling me to come!! Can’t you hear them? What’s wrong with you? I’m Jesus Christ, King of Kings!! Lord of Lords!! If you don’t let me return to them, I can’t stop the destruction!”
He finally falls asleep by mid-morning after being given enough antipsychotic medication to kill a horse. He sleeps uninterrupted for nine hours. Then suddenly his eyes fly open, and he looks startled.
He glares at me. “Where am I? How did I get here?”
“You are hospitalized in the VA psych ward after being picked up by the Coast Guard after swimming out into the bay in the middle of the night. You said you were trying to reach the angels.”
He turns his head away, his fists relaxing in the restraints, and begins to weep uncontrollably, the tears streaming down his face.
“Forgive them, Father, for they know not what they do.”
Twenty two year old male with auditory and visual hallucinations
He seems serene, much more comfortable in his own skin when compared to the others on the ward. Walking up and down the long hallways alone, he is always in deep conversation. He takes turns talking, but more often is listening, nodding, almost conspiratorial.
During a one-on-one session, he looks at me briefly, but his attention continues to be diverted, first watching an invisible something or someone enter the room, move from the door to the middle of the room, until finally, his eyes lock on an empty chair to my left. I ask him what he sees next to me.
“Jesus wants you to know He loves you.”
It takes all my will power not to turn and look at the empty chair.
Fifty four year old male with chronic paranoid schizophrenia
He has been disabled with psychiatric illness for thirty years, having his first psychotic break while serving in World War II. His only time living outside of institutions has been spent sharing a home with his mother who is now in her eighties. This hospitalization was precipitated by his increasing delusion that his mother is the devil and the voices in his head commanded that he kill her. He had become increasingly agitated and angry, had threatened her with a knife, so she called the police, pleading with them not to arrest him, but to bring him to the hospital for medication adjustment.
His eyes have taken on the glassy staring look of the overmedicated psychotic, and he sits in the day room much of the day sleeping in a chair, drool dripping off his lower lip. When awake he answers questions calmly and appropriately with no indication of the delusions or agitation that led to his hospitalization. His mother visits him almost daily, bringing him his favorite foods from home which he gratefully accepts and eats with enthusiasm. By the second week, he is able to take short passes to go home with her, spending a lunch time together and then returning to the ward for dinner and overnight. By the third week, he is ready for discharge, his mother gratefully thanking the doctors for the improvement she sees in her son. I watch them walk down the long hallway together to be let through the locked doors to freedom.
Two days later, a headline in the local paper:
“Veteran Beheads Elderly Mother”
Forty five year old male — bipolar disorder with psychotic features
He has been on the ward for almost a year, his unique high pitched laughter heard easily from behind closed doors, his eyes intense in his effort to conceal his struggles. Trying to follow his line of thinking is challenging, as he talks quickly, with frequent brilliant off topic tangents, and at times he lapses into a “word salad” of almost nonsensical sentences. Every day as I meet with him I become more confused about what is going on with him, and am unclear what is expected of me in my interactions with him. He senses my discomfort and tries to ease my concern.
“Listen, this is not your problem to fix but I’m bipolar and regularly hear command voices and have intrusive thoughts. My medication keeps me under good control. But just tell me if you think I’m not making sense because I don’t always recognize it in myself.”
During my rotation, his tenuous tether to sanity is close to breaking. He starts to listen more intently to the voices in his head, becoming frightened and anxious, often mumbling and murmuring under his breath as he goes about his day.
On a particular morning, all the patients are more anxious than usual, pacing and wringing their hands as the light outdoors slowly fades, with noon being transformed to an oddly shadowy dusk. The street lights turn on automatically and cars are driving with headlights shining. We stand at the windows in the hospital, watching the city become dark as night in the middle of the day. The unstable patients are sure the world is ending and extra doses of medication are dispensed as needed while the light slowly returns to the streets outside. Within an hour the sunlight is back, and all the patients are napping soundly.
The psychiatrist locks himself in his office and doesn’t respond to knocks on the door or calls on his desk phone.
Stressed by the recent homicide by one of his discharged patients, and identifying with his patients due to his own mental illness, he is overwhelmed by the eclipse. The nurses call the hospital administrator who comes to the ward with two security guards. They unlock the door and lead the psychiatrist off the ward. We watch him leave, knowing he won’t be back.
It is as if the light had left and only his shadow remains.
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Lyrics: Measure me, sky! Tell me I reach by a song Nearer the stars; I have been little so long.
Weigh me, high wind! What will your wild scales record? Profit of pain, Joy by the weight of a word.
Horizon, reach out! Catch at my hands, stretch me taut, Rim of the world: Widen my eyes by a thought.
Sky, be my depth, Wind, be my width and my height, World, my heart’s span; Loveliness, wings for my flight. ~Leonora Speyer
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I wake and feel the fell of dark, not day. Whathours, O what black hours we have spent This night! what sights you, heart, saw; ways you went! And moremust, in yet longer light’s delay.
With witness I speak this. But where I say Hours I mean years, mean life. And my lament Is cries countless, cries like dead letters sent To dearest him that lives alas! away.
I am gall, I am heartburn. God’s most deep decree Bitter would have me taste: my taste was me; Bones built in me, flesh filled, blood brimmed the curse.
Selfyeast of spirit a dull dough sours. I see The lost are like this, and their scourge to be As I am mine, their sweating selves; but worse. ~Gerard Manley Hopkins “I wake and feel the fell of dark”
Surfacing to the street from a thirty two hour hospital shift usually means my eyes blink mole-like, adjusting to searing daylight after being too long in darkened windowless halls. This particular January day is different. As the doors open, I am immersed in a subdued gray Seattle afternoon, with horizontal rain soaking my scrubs.
Finally remembering where I had parked my car in pre-dawn dark the day before, I start the ignition, putting the windshield wipers on full speed. I merge onto the freeway, pinching myself to stay awake long enough to reach my apartment and my pillow.
The freeway is a flowing river current of head and tail lights. Semitrucks toss up tsunami waves cleared briefly by my wipers frantically whacking back and forth.
Just ahead in the lane to my right, a car catches my eye — it looks just like my Dad’s new Buick. I blink to clear my eyes and my mind, switching lanes to get behind. The license plate confirms it is indeed my Dad, oddly 100 miles from home in the middle of the week. I smiled, realizing he and Mom have probably planned to surprise me by taking me out for dinner.
I decide to surprise them first, switching lanes to their left and accelerating up alongside. As our cars travel side by side in the downpour, I glance over to my right to see if I can catch my Dad’s eye through streaming side windows. He is looking away to the right at that moment, obviously in conversation. It is then I realize something is amiss. When my Dad looks back at the road, he is smiling in a way I have never seen before. There are arms wrapped around his neck and shoulder, and a woman’s auburn head is snuggled into his chest.
My mother’s hair is gray.
My initial confusion turns instantly to fury. Despite the rivers of rain obscuring their view, I desperately want them to see me. I think about honking, I think about pulling in front of them so my father would know I have seen and I know. I think about ramming them with my car so that we’d perish all, unrecognizable, in an explosive storm-soaked mangle.
At that moment, my father glances over at me and our eyes meet across the lanes. His face is a mask of betrayal, bewilderment and then shock, and as he tenses, she straightens up and looks at me quizzically.
I can’t bear to look any longer.
I leave them behind, speeding beyond, splashing them with my wake. Every breath burns my lungs and pierces my heart. I can not distinguish whether the rivers obscuring my view are from my eyes or my windshield.
Somehow I made it home to my apartment, my heart still pounding in my ears. The phone rings and remains unanswered.
I throw myself on my bed, bury my wet face in my pillow and pray for sleep without dreams, without secrets, without lies, without the burden of knowing a truth I alone now knew and wished I didn’t..
Postscript: I didn’t tell anyone what I saw that day. My father never asked. He divorced my mother, and was remarried quickly, my mother and two families shattered as a result. Ten years later, his second wife died due to a relentless cancer, and he returned to my mother, asking her forgiveness and wanting to remarry. Within months, he too was diagnosed with cancer and Mom nursed him through his treatment, remission, recurrence and then hospice.
We became a family again, not the same as before, yet put back together for good reason – forgiving and forgiven.
This year’s Lenten theme:
…where you go I will go… Ruth 1:16
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When the doctor suggested surgery and a brace for all my youngest years, my parents scrambled to take me to massage therapy, deep tissue work, osteopathy, and soon my crooked spine unspooled a bit, I could breathe again, and move more in a body unclouded by pain. My mom would tell me to sing songs to her the whole forty-five minute drive to Middle Two Rock Road and forty- five minutes back from physical therapy. She’d say, even my voice sounded unfettered by my spine afterward. So I sang and sang, because I thought she liked it. I never asked her what she gave up to drive me, or how her day was before this chore. Today, at her age, I was driving myself home from yet another spine appointment, singing along to some maudlin but solid song on the radio, and I saw a mom take her raincoat off and give it to her young daughter when a storm took over the afternoon. My god, I thought, my whole life I’ve been under her raincoat thinking it was somehow a marvel that I never got wet. ~Ada Limón “The Raincoat”
When I was 13, I grew too quickly. My spine developed a thoracic scoliosis (curvature) — after inspecting my back as I bent over to touch my toes, my pediatrician referred me to a pediatric orthopedic specialist an hour away from my home town.
The question was whether I would need to have a metal rod surgically placed along my spine to prevent it from more misalignment or whether I would need to wear a back brace like a turtle. The least intervention would be physical therapy to try to keep my back and abdominal muscles as strong as possible to limit the curvature.
Since my father didn’t have much flexibility in his work schedule, my mother had to drive me to the “big city” for my appointments – as a nervous driver, she did it only because she knew it was necessary to get the medical opinion needed. She asked me to read aloud to her from whatever book I was reading at the time – I don’t think she listened closely but I think she knew it would keep me occupied while she navigated traffic.
At first, we went every three months for new xrays. The orthopedist would draw on my bare back and on my spine xrays with a black marker, calculating my curves and angles with his protractor, watching for a trend of worsening as I grew taller. He reassured us that I hadn’t yet reached a critical level of deviation requiring more aggressive treatment.
Eventually my growth rate slowed down and the specialist dismissed me from further visits, wishing me well. He told me I would certainly be somewhat “crooked” for the rest of my life, and it would inevitably worsen in my later years. I continued to visit PT for regular visits; my mom would patiently wait in the car as I sweated my way through the regimen.
The orthopedist was right about the curvature of my aging spine. I am not only a couple inches shorter now, but my rib cage and chest wall is asymmetric affecting my ability to stand up totally straight. An xray shows the wear and tear of arthritis changes in my somewhat twisted chest wall and spine.
I consider crookedness a small price to pay for avoiding a serious surgery or a miserable brace as a teenager.
What I didn’t understand at the time was the commitment my mother made to make sure I got the medical monitoring I needed, even if it meant great inconvenience in her life, even if she was awake at night worried about the outcome of the appointments, even if the financial burden was significant for my family. She, like so many parents with children with significant medical or psychological challenges, gave up her wants and wishes to make sure I received what I needed.
As a kid, I just assumed that’s what a mom does. Later, as a mom myself, I realized it IS what moms and dads do, but often at significant personal cost. As a physician, I saw many young people whose parents couldn’t make the commitment to see they got the care they needed, and it showed.
I was blessed by parents who did what their kids needed to thrive.
Without my realizing it, my mom constantly offered me her raincoat so I wouldn’t get wet. Meanwhile she was getting drenched. I never really understood.
Some of you walk this road, now and in the past, sometimes long miles with a family member, handing over your own raincoat when the storms of life overwhelm.
Your sacrifice and compassion are Jesus’ hands and feet made tangible. He walks along where we go, keeping us safe and dry for as long as it takes.
This year’s Lenten theme:
…where you go I will go… Ruth 1:16
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To be commanded to love God at all, let alone in the wilderness , is like being commanded to be well when we are sick, to sing for joy when we are dying of thirst, to run when our legs are broken. But this is the first and great commandment nonetheless. Even in the wilderness- especially in the wilderness – you shall love him. ~Frederick Buechnerfrom A Room Called Remember
The wilderness might be a distant peak far removed from anything or anyone, where there is bleak darkness.
The wilderness might be the darkest corner of the human heart we keep far away from anything and anyone.
From my kitchen window on a clear day, I sometimes see a distant mountain wilderness, when the cloud cover moves away.
During decades of perching on a round stool in clinic exam rooms, I was given access to hearts lost in the wilderness many times every day.
Sometimes the commandment to love God seems impossible. We are too self-sufficient, too broken, too frightened, too wary to trust God with our love and devotion.
Recognizing a diagnosis of wilderness of the heart is straight forward: despair, discouragement,disappointment, lack of gratitude, lack of hope.
The treatment is to allow the healing power of the Father who sent His own Son to navigate the wilderness in our place.
He reaches for our bitter, wary, and broken hearts that beat within our bodies, to bring us home from the dark wilderness of our souls.
This year’s Lenten theme:
…where you go I will go… Ruth 1:16
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Oh! hush thee, my baby, the night is behind us, And black are the waters that sparkled so green. The moon, o’er the combers, looks downward to find us At rest in the hollows that rustle between. Where billow meets billow, there soft be thy pillow; Ah, weary wee flipperling, curl at thy ease! The storm shall not wake thee, nor shark overtake thee, Asleep in the arms of the slow-swinging seas. ~Rudyard Kipling “Seal Lullaby”
For you created my inmost being; you knit me together in my mother’s womb. 14 I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. 15 My frame was not hidden from you when I was made in the secret place, when I was woven together in the depths of the earth. 16 Your eyes saw my unformed body; all the days ordained for me were written in your book before one of them came to be. 17 How precious to me are your thoughts,[a] God! How vast is the sum of them! 18 Were I to count them, they would outnumber the grains of sand— when I awake, I am still with you. Psalm 139: 13-18
The call came in the middle of a busy night as we worked on a floppy baby with high fever, a croupy toddler whose breathing squeezed and squeaked, a pale adolescent transfusing due to leukemia bleeding.
It was an anencephalic baby just born, unexpected, unwanted in a hospital across town, and she needed a place to die.
Our team of three puzzled how to manage a baby without a brain– simply put her in a room, swaddled, kept warm but alone? Hydrate her with a dropper of water to moisten her mouth? Offer her a taste of milk?
She arrived by ambulance, the somber attendants leaving quickly, unnerved by her mewing cries.
I took the wrapped bundle and peeled away the layers to find a plump full term baby, her hands gripping, arms waving once freed; just another newborn until I pulled off her stocking cap and looked into an empty crater — only a brainstem lumped at the base.
No textbook pictures had prepared me for the wholeness, the holiness of this living, breathing child.
Her forehead quit above the eyebrows with the entire skull missing, tufts of soft brown hair fringed her perfect ears, around the back of her neck. Her eyelids puffy, squinting tight, seemingly too big above a button nose and rosebud pink lips.
She squirmed under my fingers, her muscles strong, breaths coming steady despite no awareness of light or touch or noise.
Yet she cried in little whimpers, mouth working, seeking, lips tentatively gripping my fingertip. A bottle warmed, nipple offered, a tentative suck allowing tiny flow, then, amazing, a gurgling swallow.
Returning every two hours, more for me than for her, I picked her up to smell the salty sweet scent of amnion still on her skin as she grew dusky.
Her breathing weakened, her muscles loosened, giving up her grip on a world she would never see or hear or feel to behold something far more glorious, as I gazed into her emptiness, waiting to be filled.
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