There you are this cold day boiling the water on the stove, pouring the herbs into the pot, hawthorn, rose; buying the tulips & looking at them, holding your heart in your hands at the table saying please, please, to nobody else there in the kitchen with you. How hard, how heavy this all is. How beautiful, these things you do, in case they help, these things you do that, although you haven’t said it yet, say that you want to live. ~Victoria Adukwei Bulley“There You Are”
Our daily rituals are so routine and mundane, unless they are disrupted by unexpected and unwanted events. Then we desire nothing more than to get back to what is routine, familiar and comforting.
Right now, I’m aware of at least four friends in our small church congregation who are undergoing treatment for cancer, and a couple others who are waiting on testing results. They would love nothing more than a boringly routine day like they had known pre-diagnosis. Instead, nothing seems as if it will ever be the same again, except an awareness of how precious and valued each day of life is.
Thankfully, very few people are forced to share their life-threatening illnesses with the world via headlines, videos and photos like the King of England and Princess of Wales. Surely, that adds another layer of hard heaviness on top of dealing with such difficult, exhausting treatments and interventions.
For those coping with challenging medical illness, I pray for comforting rituals and routines that remind you how much you are loved. These beautiful moments of everyday life are reasons you want to live, even as you do these hard things.
May your heart and soul be held in loving hands as you see this through.
AI image created for this post
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I pray because I can’t help myself. I pray because I’m helpless. I pray because the need flows out of me all the time — waking and sleeping. It doesn’t change God — it changes me. ~attributed to C.S. Lewis in “Shadowlands”
A recovering Faye with her sister Merry
Last week, on May 1, I found a surprise hanging on our front door – a little May Day basket full of little perennial blooms, along with a cheery message and a rainbow sticker. It hung from the door handle as a symbol of spring renewal, as well as a bit of a mystery – the flowers came with no hint of who had left them.
So I did a little sleuthing (actually A LOT of sleuthing) and found out they were delivered by our nearby neighbor Faye, who turned 11 just last week. She has a very special history some of you may remember:
Nine years ago, on this Barnstorming blog, I wrote about our little neighbor, two year old Faye, sickened by E.Coli 0157 infection/toxin to the point of becoming critically ill with Hemolytic Uremic Syndrome (plummeting cell counts and renal failure requiring dialysis to keep her alive). My original post about her illness is found here. I asked for your prayers on her (and others’) behalf.
At the worst point of her hospitalization at Seattle Children’s, when the doctors were sounding very worried on her behalf, Faye’s mother Danyale, in the midst of her helplessness, wrote to our Wiser Lake Chapel Pastor Bert Hitchcock with a plea for prayers from our church.
Here is how Pastor Bert responded to Danyale and her husband Jesse who remained at home, caring for their four other children:
“I understand that Faye (and everyone dealing with her) is fighting for her life. And that’s the way I am praying: that God in his merciful power, would deliver her, even if her condition looks hopeless.
If you were able to be in church this morning, you might hear my sense of urgency, for I have chosen this benediction, with which to close the service — and I give it to you right now, from the mouth of our Lord:
Jesus said: “Do not be afraid, Danyale! I am the First and the Last. I am the Living One. I died, but look – I am alive forever and ever! And I hold the keys of death and the grave.
Neither you nor I know how this will turn out — the possibilities are terrifying. But we do know who holds the keys of life and health and death; He is the Life-giver, who heals all our diseases — nothing can rip our lives (or little Faye’s life) out of His hands. And, when He does allow these bodies to give out, He promises to give us glorious new life, safe forever in His presence. These are not pious platitudes; these are the rock-hard promises of the one who loves us more than life, and who is absolutely in control of what is happening today.
Safe in the arms of Jesus, Safe on His gentle breast; There by His love o’ershaded, Sweetly my soul shall rest.
I’m praying for you all; and your Chapel Family will be praying this morning, as we gather in the Lord’s presence.
Love you, and yours, Danyale, Pastor Bert Hitchcock
That week, Faye’s renal failure reversed itself. She was able to return home with normal kidney function and improved cell counts, having also survived a bout with pneumonia.
Here is what her mother wrote to share with you all once she came home:
“Dear Friends and readers of Barnstorming,
Some of you we know, but so many of you we do not. Whichever the case, Emily tells me you have prayed for our little girl, Faye, throughout her sickness and into her recovery. What can parents say when people–many of whom we may never be privileged to meet in this life–have come alongside us to beseech the Lord for our daughter’s life and pray for her healing? Thank you. Thank you!
Faye is doing so well; stronger every day, more and more herself! It is wonderful to see.
This week we head back down to Seattle Children’s for a check up–we’ll get to say hello to the good folks who saw her through her sickness. A special stop will be made on the dialysis unit to see Nurse Kathy, a favorite of Faye’s. We anticipate a good report!
Thanks again for your love and support, far and wide. Truly astounding. Danyale and Jesse, for Faye, too
—————————————
Now Faye is a delightful, healthy eleven year old girl who secretly blessed me with a basket of May Day flowers. She doesn’t remember the crisis that nearly took her from us nine years ago, but she does know about God’s rainbow promises. And she certainly knows about the power of prayer in the face of helplessness.
As Pastor Bert said: our faith in an unchanging and steadfast God who loves and holds us, can change us – forever.
Come, all you who are thirsty, come to the waters; and you who have no money, come, buy and eat! Come, buy wine and milk without money and without cost. Why spend money on what is not bread, and your labor on what does not satisfy? Listen, listen to me, and eat what is good, and you will delight in the richest of fare. Give ear and come to me; listen, that you may live. I will make an everlasting covenant with you… Isaiah 55:1-3
When he takes it all away, will we love him more than things, more than health, more than family, and more than life? That’s the question. That’s the warning. That’s the wonderful invitation. ~John Piper in “I Was Warned By Job This Morning”
We all have recently lived through a time when the freedoms we take for granted – our jobs, education, corporate worship, visiting easily with extended family and friends, our desire to go where we wish when we wish – were challenged due to the threat of a packet of viral RNA invading our bodies and wreaking havoc.
Though that threat has largely passed, what we lost during those years still lingers – financial security, educational and career progress. Many are now chronically ill due to the virus, but most painful, we experienced the death of millions of loved ones.
The Book of Job is a warning about losing everything – what we have strived for, cared about, loved and valued suddenly taken away. If we are stripped bare naked, nothing left but our love for God and His sovereign power over our lives, will we still worship His Name, inhale His Word like air itself, submit ourselves to His plan over our plan?
I know I fall far short of the mark. It takes only small obstacles or losses to trip me up so I stagger in my faith, trying futilely to not lose my balance, and fall flat-faced and immobilized.
Just recently, people I love are confronting this reality in their own lives. When I’ve seen people lose almost everything, either in a disaster, or an accident, or devastating illness like cancer or COVID-19, I’ve looked hard at myself and asked if I could sustain such loss in my life and still turn myself over to the will of God.
I would surely plead for reprieve and ask the horribly desperate question, “why me?”, girding myself for the response: “and why not you?”
The invitation, scary and radical as it is, is from God straight to my heart, asking that I trust His plan for my own and my loved ones’ life and death. This trust is crucial to my faith, no matter what happens, no matter how much suffering, no matter how much, like Christ in the garden, I plead that it work out differently, and not hurt so much.
The invitation to His plan for my life has been written, personally carried to me by His Son, and lies ready in my hands, even if I’m wary of opening it. It is now up to me to read it carefully, and with deep gratitude that I am even included, respond with an RSVP that says emphatically, “I’ll be there! Nothing could keep me away.”
Or I could leave it untouched and unread, fearing it is too scary to open. Or even toss it away altogether, thinking the invitation really wasn’t meant for me.
Even if, in my heart, I knew it was.
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Astonishing material and revelation appear in our lives all the time. Let it be. Unto us, so much is given. We just have to be open for business. ~Anne Lamott from Help Thanks Wow: Three Essential Prayers
It was my privilege to work in a profession where astonishment and revelation awaited me behind each exam room door.
During an average clinic day, I opened those doors 36 times, then close them behind me and settle in for the ten or fifteen minutes allocated per patient. I needed to peel through the layers of a problem quickly to find the core of truth about why a patient was seeking help.
Sometimes what I was looking for was right on the surface: a bad cough, a swollen ankle, a bad laceration, but also easily were their tears, their pain, their fear. Most of the time, the reason was buried deep and I needed to wade through the rashes and sore throats and headaches to find it.
Once in a while, I could actually do something tangible to help right then and there — sew up the cut, lance the boil, splint the fracture, restore hearing by removing a plug of wax from an ear canal.
Often I simply gave permission to a patient to be sick — to allow themselves time to renew, rest and trust their bodies to know what is needed to heal well.
Sometimes, I was the coach pushing them to stop living “sick” — to stop self-medicating when life is challenging, to stretch even when it hurts, to strive to overcome the overwhelm.
Always I was looking for an opening to say something a patient may consider later — how they might make different choices, how they could be bolder and braver in their self care and care for others, how every day is a thread in the larger tapestry of their one precious life.
At night I took calls and each morning woke early to get online work done, trying to avoid feeling unprepared and inadequate to the volume of tasks heaped upon the day. I know I was frequently stretched beyond my capacity, stressed by administrative pressures and obstacles I faced in providing the best care.
I understood trials my patients were facing because I had faced them too. I shared their worry, their fears and vulnerabilities because I had lived through it too.
Even now, I try to simply let it be, especially through troubled times, when I have been gifted so much over the years. So my own experience is a gift I can still share here, even in retirement.
I’ll never forget: no matter who waited behind the exam room door, they never failed to be astonishing and revelatory to me, professionally and personally.
I’m so grateful I was open for business for 42 years. I don’t see patients in an exam room any longer. This Doctor is In, writing every day, with friendly advice. Let it be so.
Peanuts comic by Charles Schulz
What is it You see What do I possess Oh how could it be I should be so blessed
I am nothing much Neither saint nor queen I am just a girl And You are everything
But if You ask Let it be so Let it be so and if You will Let it be so
I am so afraid Of this great unknown They may turn away I may be all alone
My life is so small so small a price to pay to see my savior come and take my sin away
I will bear their scorn I will wear the shame All things for the good All things in Your name
Father be my strength Shepherd hold my hand Open wide my heart to welcome who is there ~Sarah Hart
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He has dwelt in the West since the days of dawn, and I have dwelt with him years uncounted . . . and together through ages of the world we have fought the long defeat. ~J.R.R. Tolkien from The Lord of the Rings
It is only 10 days before we bid farewell to autumn and accept the arrival of the winter solstice, signaling the long slow climb back to daylight. This giving-way to the darkness has felt like a defeat we may never recover from.
Yet the sunset becomes a startling send-off for fall, coloring Mt. Baker and surrounding an almost full moon with purple in the eastern sky. Our farm, for a deceptive few minutes, appears rosy and warm in crisp subfreezing weather. Then all becomes gray again, and within an hour we are shrouded in thick fog which ices the asphalt as darkness fell. It becomes a challenge to avoid the deep ditches along our country roads, with the white fog line being the critical marker preventing potential disaster.
The ever present fog this time of year cloaks and smothers in the darkness, not unlike the respiratory and gastrointestinal viruses that have hit many households hard this week. Plenty of people have been feverish, coughing and snuffling, unable to see past the ends of their swollen noses, as if the fog descended upon them in an impenetrable gray cloud. It is an unwelcome reminder of our vulnerability to microscopic organisms that can defeat us and lay us low in a matter of hours, just as a sudden freezing fog can lure us to the ditch.
We are forced to stay put, our immune systems fighting back at a time when there are dozens of responsibilities vying for attention in preparation for the holidays. Little gets accomplished other than our slow wait for healing and clarity–at some point the viral fog will dissipate and we can try climbing back into life and navigating without needing the fog lines as guides.
Ditches have been very deep for some folks recently, with unexpected deaths of loved ones, the diagnosis of cancers with difficult treatment options swallowing up their light and joy. Despite profound losses and pain, people courageously continue to fight, climbing their way out of the darkness to the light.
The day’s transition to night becomes bittersweet: these bright flames of color herald our uneasy future sleep after fighting the long defeat on this soil.
The sun “settles” upon the earth and so must we.
Be at ease, put down the heavy burden and rest. We can celebrate, with chorus and gifts, the arrival of brilliant light in our lives. Instead of darkness overcoming us, our lives become illuminated in glory, peace, and grace.
The Son has settled among us and so shall we be comforted.
Advent 2023 theme …because of the tender mercy of our God, whereby the sunrise shall visit us from on high to give light to those who sit in darkness and in the shadow of death, to guide our feet into the way of peace. Luke 1: 78-79 from Zechariah’s Song
Sure on this shining night of star-made shadows round, kindness must watch for me this side the ground, on this shining night, this shining night
The late year lies down the north All is healed, all is health High summer holds the earth, hearts all whole The late year lies down the north All is healed, all is health High summer holds the earth, hearts all whole Sure on this shining night, sure on this shining, shining night
Sure on this shining night I weep for wonder wand’ring far alone Of shadows on the stars Sure on this shining night, this shining night On this shining night, this shining night Sure on this shining night ~from James Agee’s poem
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When great souls die, the air around us becomes light, rare, sterile. We breathe, briefly. Our eyes, briefly, see with a hurtful clarity. Our memory, suddenly sharpened, examines, gnaws on kind words unsaid, promised walks never taken.
Great souls die and our reality, bound to them, takes leave of us. Our souls, dependent upon their nurture,now shrink, wizened. Our minds, formed and informed by their radiance, fall away. We are not so much maddened as reduced to the unutterable ignorance of dark, cold caves.
And when great souls die, after a period peace blooms, slowly and always irregularly. Spaces fill with a kind of soothing electric vibration. Our senses, restored, never to be the same, whisper to us. They existed. They existed. We can be. Be and be better. For they existed. ~Maya Angelou from “When Great Trees Fall”
Sara, my dear friend of nearly forty years,
When I learned you died this morning, your body overwhelmed by a sudden illness no one anticipated – I sat in stillness, trying once again to remember your soft voice, as if you were still part of this world.
I knew you were gone.
It was God’s timing to collect you back and so you went. We all are poorer without you – you the richer as you settle into a body no longer a burden and a struggle.
As recently as last week, you wondered aloud if you had it in you, after decades of surviving chronic illness and two cancers, to keep going with all your physical challenges. God heard your prayer. Instead of feeling depleted and emptied of purpose, you are now restored. The love and energy you shared during your long life, through your doctoring and farming and mothering and grandmothering, is replenished in the presence of Jesus Christ.
You have left so much of yourself behind: Your mentoring made me a better doctor. Your example made me a better mother. Your gentle compassion made me a better friend. Your forgiving grace and quiet patience made me a better person.
I wasn’t yet ready to say goodbye to you: I regret not saying everything I needed to say. I regret not taking more walks with you. I regret not letting you know how much you blessed me and the world simply by existing.
Now there is no doubt you are blessing heaven. And so we who love you – your husband, children, grandchildren, your friends, colleagues, former patients – gratefully share the rare gift of grace that is Dr. Sara Cuene Watson.
All flesh is grass, and all its beauty is like the flower of the field. The grass withers, the flower fades when the breath of the LORD blows on it; surely the people are grass. The grass withers, the flower fades, but the word of our God will stand forever. Isaiah 40: 6-8
I’ve learned that evenwhen I have pains, I don’t have to be one … I’ve learned that: people will forget what you said, people will forget what you did, but people will never forget how you made them feel. ~Maya Angelouon her 70th birthday, citing a quote from Carl Buehner
I learned from my mother how to love the living, to have plenty of vases on hand in case you have to rush to the hospital with peonies cut from the lawn, black ants still stuck to the buds. I learned to save jars large enough to hold fruit salad for a whole grieving household, to cube home-canned pears and peaches, to slice through maroon grape skins and flick out the sexual seeds with a knife point. I learned to attend viewings even if I didn’t know the deceased, to press the moist hands of the living, to look in their eyes and offer sympathy, as though I understood loss even then. I learned that whatever we say means nothing, what anyone will remember is that we came. I learned to believe I had the power to ease awful pains materially like an angel. Like a doctor, I learned to create from another’s suffering my own usefulness, and once you know how to do this, you can never refuse. To every house you enter, you must offer healing: a chocolate cake you baked yourself, the blessing of your voice, your chaste touch. ~Julie Kasdorf– “What I Learned from my Mother”
Moms often know best about these things — how to love others when and how they need it — the ways to ease pain, rather than become one. Despite years of practice, I don’t always get it right; others often do it better.
Showing up with food is always a good thing but it is the showing up part that is the real food; bringing a cake is simply the icing.
Working as a physician over four decades, my usefulness tended to depend on the severity of another’s worries and misery. If no illness, no symptoms, no fear, why bother seeing a doctor? Since retiring, the help I offer no longer means writing a prescription for a medication, or performing a minor surgery. I have to simply offer up me for what it’s worth, without the M.D.
To be useful without a stethoscope, I aim to be like any good mom or grandma. I press my hand into another’s, hug when needed, smile and listen and nod and sometimes weep when someone has something they need to say. No advanced degree needed.
Oh, and bring flowers. Cut up fruit. Bake a cake. Leave the ants at home.
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Good things as well as bad, you know are caught by a kind of infection.
If you want to get warm you must stand near the fire: if you want to be wet you must get into the water. If you want joy, power, peace, eternal life, you must get close to, or even into, the thing that has them.
They are not a sort of prize which God could, if He chose, just hand out to anyone. They are a great fountain of energy and beauty spurting up at the very centre of reality. If you are close to it, the spray will wet you: if you are not, you will remain dry.
Once a man is united to God, how could he not live forever? Once a man is separated from God, what can he do but wither and die? ~C.S. Lewis- Mere Christianity
Now looking back over four decades as a working physician, I remember struggling after the observance of rest and worship each Sunday, to return to the sterile world of a busy secular clinic.
Although freshly exposed to the Spirit, immersed in the reality of a loving God, I was restricted from sharing my infection while close to my patients. Each Monday, my responsibility was to prevent contagion, measuring my words and washing my hands thoroughly upon entering each exam room.
At times I failed in my efforts, even as I donned a protective mask and gloves to keep us from spreading our respective infections.
I hope now, with masks and gloves removed, if I’m contagious, may it be because I’m overwhelmed with the Spirit rather than engulfed in the infections of this world.
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The earth invalid, dropsied, bruised, wheeled Out in the sun, After frightful operation. She lies back, wounds undressed to the sun, To be healed, Sheltered from the sneapy chill creeping North wind, Leans back, eyes closed, exhausted, smiling Into the sun. Perhaps dozing a little. While we sit, and smile, and wait, and know She is not going to die. ~Ted Hughes from ” A March Morning Unlike Others” from Ted Hughes. Collected Poems
March. I am beginning to anticipate a thaw. Early mornings the earth, old unbeliever, is still crusted with frost where the moles have nosed up their cold castings, and the ground cover in shadow under the cedars hasn’t softened for months, fogs layering their slow, complicated ice around foliage and stem night by night,
but as the light lengthens, preacher of good news, evangelizing leaves and branches, his large gestures beckon green out of gray. Pinpricks of coral bursting from the cotoneasters. A single bee finding the white heather. Eager lemon-yellow aconites glowing, low to the ground like little uplifted faces. A crocus shooting up a purple hand here, there, as I stand on my doorstep, my own face drinking in heat and light like a bud welcoming resurrection, and my hand up, too, ready to sign on for conversion. ~Luci Shaw “Revival” from What the Light Was Like.
Spring is emerging slowly this year from an exceptionally haggard and droopy winter. All growing things are a month behind the usual budding blooming schedule when, like the old “Wizard of Oz” movie, the landscape will suddenly turn from monochrome to technicolor, the soundtrack from forlorn to glorious birdsong.
Yearning for spring to commence, I tap my foot impatiently as if owed a timely seasonal transformation from dormant to verdant. We all have been waiting for the Physician’s announcement that this patient survived some intricate life-changing procedure: “I’m happy to say the Earth is alive after all and restored, wounded but healing, breathing on her own but too sedated for a visit just yet.”
I wait impatiently to celebrate her healing, yet I know Creation is very much alive- this temporary home of ours. No invalid this patient. She lives, she breathes, she thrives, she will bloom and sing with everything she’s got and soon, so will I.
This year’s Lenten theme: So we fix our eyes not on what is seen, but on what is unseen, since what is seen is temporary, but what is unseen is eternal. 2 Corinthians 4: 18
Always at dusk, the same tearless experience, The same dragging of feet up the same well-worn path To the same well-worn rock; The same crimson or gold dropping away of the sun The same tints—rose, saffron, violet, lavender, grey Meeting, mingling, mixing mistily; Before me the same blue black cedar rising jaggedly to a point; Over it, the same slow unlidding of twin stars, Two eyes, unfathomable, soul-searing, Watching, watching—watching me; The same two eyes that draw me forth, against my will dusk after dusk; The same two eyes that keep me sitting late into the night, chin on knees Keep me there lonely, rigid, tearless, numbly miserable, —The eyes of my Regret. ~Angelina Weld Grimké “The Eyes of My Regret”
How granular they feel—grief and regret, arriving, as they do, in the sharp particularities of distress. Inserting themselves— cunning, intricate, subversive—into our discourse.
In the long night, grievances seem to multiply. Old dreams mingling with new. Disappointment and regret bludgeon the soul, your best imaginings bruised, your hopes ragged.
Yet wait, watch. From the skylight the room is filling with soft early sun, slowly sifting its light on the bed, on your head, a shower of fine particles. How welcome. And how reliable. ~Luci Shaw“Sorrow”
It’s now been a interminably long three years: millions of people sickened by a virus that could kill within days or simply be spread by those unwitting and asymptomatic. We’ve lived through shut down of businesses and schools, hospitals and clinics being overwhelmed, and hoarding behavior resulting in shortages of products addressing basic needs.
Now that I can look back with a bit more perspective, I know my first reaction was fear for myself and those I love. My words flew out too quickly, my anxiety mixed with frustration and anger, my tears spilling too easily. Like so many others, my work life forever changed.
I ended up lying awake many nights with regrets, wondering if I should be doing more than just telemedicine from home, yet wanting to hide myself and my M.D. degree under a rock until the unending viral scourge blew over.
Yet amazingly, miracles of grace in many places: generous people full of courage made a difference in small and large ways all around the world. Some took enormous personal risks to take care of strangers and loved ones. Some worked endless hours and when they came home, they remained isolated to avoid infecting their families.
Such grace happens when hardship is confronted head on by the brilliant light of sacrifice. I am deeply grateful to those who have worked tirelessly providing care and compassion to the ill. Their work is never done.
We know, in His humanity, Jesus wept, in frustration, in worry for His people, in grief. His tears still light the sky with a promise of salvation as He assures He won’t leave us alone in darkness – our regret dissipates with the dawn.
This year’s Barnstorming Lenten theme is taken from 2 Corinthians 4: 18: So we fix our eyes not on what is seen, but on what is unseen, since what is seen is temporary, but what is unseen is eternal.
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