Tag: anencephaly

Oh! hush thee, my baby, the night is behind us,
And black are the waters that sparkled so green.
The moon, o’er the combers, looks downward to find us
At rest in the hollows that rustle between.
Where billow meets billow, there soft be thy pillow;
Ah, weary wee flipperling, curl at thy ease!
The storm shall not wake thee, nor shark overtake thee,
Asleep in the arms of the slow-swinging seas.
~Rudyard Kipling “Seal Lullaby”

For you created my inmost being;
    you knit me together in my mother’s womb.
¹⁴ I praise you because I am fearfully and wonderfully made;
    your works are wonderful,
    I know that full well.
¹⁵ My frame was not hidden from you
    when I was made in the secret place,
    when I was woven together in the depths of the earth.
¹⁶ Your eyes saw my unformed body;
    all the days ordained for me were written in your book
    before one of them came to be.
¹⁷ How precious to me are your thoughts,^[a] God!
    How vast is the sum of them!
¹⁸ Were I to count them,
    they would outnumber the grains of sand—
    when I awake, I am still with you.
Psalm 139: 13-18

The call came in the middle of a busy night
as we worked on a floppy baby with high fever,
a croupy toddler whose breathing squeezed and squeaked,
a pale adolescent transfusing due to leukemia bleeding.

It was an anencephalic baby just born, unexpected, unwanted
in a hospital across town, and she needed a place to die.

Our team of three puzzled how to manage a baby without a brain–
simply put her in a room, swaddled, kept warm but alone?
Hydrate her with a dropper of water to moisten her mouth?
Offer her a taste of milk?

She arrived by ambulance, the somber attendants
leaving quickly, unnerved by her mewing cries.

I took the wrapped bundle and peeled away the layers
to find a plump full term baby, her hands gripping, arms waving
once freed;  just another newborn until I pulled off her stocking cap
and looked into an empty crater — only a brainstem lumped at the base.

No textbook pictures had prepared me
for the wholeness, the holiness of this living, breathing child.

Her forehead quit above the eyebrows with the entire skull missing,
tufts of soft brown hair fringed her perfect ears,
around the back of her neck.
Her eyelids puffy, squinting tight, seemingly too big
above a button nose and rosebud pink lips.

She squirmed under my fingers, her muscles strong, breaths coming steady despite no awareness of light or touch or noise.

Yet she cried in little whimpers, mouth working, seeking,
lips tentatively gripping my fingertip. A bottle warmed,
nipple offered, a tentative suck allowing tiny flow,
then, amazing,  a gurgling swallow.

Returning every two hours, more for me than for her, I picked her up
to smell the salty sweet scent of amnion still on her skin as she grew dusky.

Her breathing weakened, her muscles loosened, giving up her grip
on a world she would never see or hear or feel to behold
something far more glorious, as I gazed
into her emptiness, waiting to be filled.

(this poem has been published in Sarah Arthur‘s wonderful Lenten and Eastertide anthology Between Midnight and Dawn)

This year’s Lenten theme:

…where you go I will go…
Ruth 1:16