When the doctor suggested surgery
and a brace for all my youngest years,
my parents scrambled to take me
to massage therapy, deep tissue work,
osteopathy, and soon my crooked spine
unspooled a bit, I could breathe again,
and move more in a body unclouded
by pain. My mom would tell me to sing
songs to her the whole forty-five minute
drive to Middle Two Rock Road and forty-
five minutes back from physical therapy.
She’d say, even my voice sounded unfettered
by my spine afterward. So I sang and sang,
because I thought she liked it. I never
asked her what she gave up to drive me,
or how her day was before this chore. Today,
at her age, I was driving myself home from yet
another spine appointment, singing along
to some maudlin but solid song on the radio,
and I saw a mom take her raincoat off
and give it to her young daughter when
a storm took over the afternoon. My god,
I thought, my whole life I’ve been under her
raincoat thinking it was somehow a marvel
that I never got wet.
~Ada Limón “The Raincoat”
When I was 13, I grew too quickly. My spine developed a thoracic scoliosis (curvature) — after inspecting my back as I bent over to touch my toes, my pediatrician referred me to a pediatric orthopedic specialist an hour away from my home town.
The question was whether I would need to have a metal rod surgically placed along my spine to prevent it from more misalignment or whether I would need to wear a back brace like a turtle. The least intervention would be physical therapy to try to keep my back and abdominal muscles as strong as possible to limit the curvature.
Since my father didn’t have much flexibility in his work schedule, my mother had to drive me to the “big city” for my appointments – as a nervous driver, she did it only because she knew it was necessary to get the medical opinion needed. She asked me to read aloud to her from whatever book I was reading at the time – I don’t think she listened closely but I think she knew it would keep me occupied while she navigated traffic.
At first, we went every three months for new xrays. The orthopedist would draw on my bare back and on my spine xrays with a black marker, calculating my curves and angles with his protractor, watching for a trend of worsening as I grew taller. He reassured us that I hadn’t yet reached a critical level of deviation requiring more aggressive treatment.
Eventually my growth rate slowed down and the specialist dismissed me from further visits, wishing me well. He told me I would certainly be somewhat “crooked” for the rest of my life, and it would inevitably worsen in my later years. I continued to visit PT for regular visits; my mom would patiently wait in the car as I sweated my way through the regimen.
The orthopedist was right about the curvature of my aging spine. I am not only a couple inches shorter now, but my rib cage and chest wall is asymmetric affecting my ability to stand up totally straight. Just last week, I had an xray of my collar bones as even those joints have developed wear and tear changes. I consider being crooked a small price to pay for avoiding a serious surgery or a miserable brace as a teenager.
What I didn’t understand at the time was the commitment my mother made to make sure I got the care I needed, even if it meant great inconvenience in her life, even if she was awake at night worried about the outcome of the appointments, even if the financial burden was significant for my family. She, like so many parents with children with significant medical or psychological challenges, gave up her wants and wishes to make sure I received what I needed. As a kid, I just assumed that’s what a mom does. Later, as a mom myself, I realized it is what moms do, but often at significant personal cost. As a physician, I saw many young people whose parents couldn’t make the commitment to see they got the care they needed, and it showed.
I was one blessed by parents who did what their kids needed to thrive.
My mom constantly offered me her raincoat so I wouldn’t get wet. Meanwhile she was being drenched.
Thank you, Mom, for making sure I was covered by your love. I still am.